Hello my name is Tanga Lewis, of Greenville SC , and on June 6, 2000, my life changed forever. My daughter, Asiaonna Shi' Braille Wallace, was born 6 lbs, 13 oz. Although it sounds normal, at 5 1/2 months, during an ultrasound, the doctor noticed something abnormally wrong with my baby girl. They noticed that her heart didn't seemed the way that it should. As 2 months progressed. they referred me to another doctor, who told me that after the delivery that the baby may not be breathing. Surprisingly she was. The cries didint stop there, by the time she turned 2 yrs old, she had overcome 3 heart surgeries and 1 stomach surgery. Since then Asia was pronounced Terminally ILL. Instead of her blood vessels growing around her heart, they grew inside and outside of her left lung, which causes infections that makes her real sick. Her physicans and I have had several meetings to determine wherther or not the lung can be removed. Unfortunately it can't, I was advised that she would bleed to death, before they will actually remove it. I have lost my little girl 4 different times. If it wasn't for the 14 different medications that she takes daily, and most of all the grace of God, my baby would not be alive today. My daughter have been such a huge inspiration in my life. She has taught me the meaning of hard work, and how not to give up. When I look at her, I feel as if she can go through so much pain and still manage to hold such a gracious, precious smile upon her face. My daughter suffers from Congenital Heart Disease (Bronchiectasis), Chronic Lung disease, Protien Losing Enteropathy, Kindey Trouble, and she has no slpein and so much more! I try to talk to her and explain her situation to her, but it scares me when she explain to me what she wants to look like when she dies. I can't imagine myself without my daughter. It is really a tought thing to think about and to go thru. I see the changes that my daughter goes thru, that her doctor warned me of. Like the colorations in her face. and the way she struggles to breathe. Hospice has played a major role in Asia's life. They are helping us to prepare for the worst, and to make her life as comfortable as they can. Although my family has been there for her by showing her how much they love her, my mother has been a very tremendous help. If it wasn't for my mother, I don't know where I would be. Asia and my mother has grown a bond together. They are so close that noone could tear them apart. Asia is 11 yrs old, and has been through much more than any ordinary adult can handle. She is very brave and strong. As of April 24, 2012, Doctors have given up on her, saying it could be days, weeks, or even months for her life to end... So we are asking everyone to pray with us, in this time of need!!! Everything is in God's hands now!!!
If you would like to make a donation towards this cause, please feel free to do so!!! All donations will be greatly appreciated, thank you kindly!!